Have you tried…
I recently read this lovely poem on Facebook about some of the ‘cures’ that people often tell those of us with M.E. that we should totally try because AMAZING MIRACLES OF UNEXPLAINABALE WONDER! Annoyingly, I can’t embed the post here (WordPress doesn’t seem to like Facebook’s embedding code) and I can’t republish the poem because I don’t actually know who wrote it and being an artist, it would be hypocritical of me to republish someone else’s work without permission or credit. If you’re on Facebook, you can click the link above and read it though. And you should, cause it’s damn good.
When I saw the poem, it made me smile in a kind of sad way. Thing is, some of the stuff mentioned (and lots of other alternative/complementary) therapies and treatments can or may help with some symptoms for some people to a greater or lesser degree, which is great. Anything that helps at all is a positive thing (providing you can afford it, which is another issue altogether). But they are NOT cures.
I wish people would realise how insensitive, frustrating, upsetting and offensive it is to hurl ‘miracles’ and long distance ‘science’ at people who have a chronic illness for which there isn’t currently an actual medical cure or consistent, reliable treatment.
There are few things in life that grate on my nerves more than the whole “I heard about this person who had M.E. and they did this and got a bit better” thing. By all means, share with me actual information, statistically reliable scientific studies, empirical evidence, the specifics of exactly HOW a certain treatment can reduce certain symptoms, not just vague statistical suggestions of correlation with no proof of cause and effect.
But please remember that M.E. symptoms tend to increase and decrease in severity at times over the course of days, weeks, months and years. Some people even spontaneously recover. Some people never do. People who have this condition know a lot about it because we actually live with it, and believe it or not, we already do everything we possibly can to improve our situation because there’s very little reliable help and support available.
As soon as people start with the ‘miracles’, I switch off. Because switching off is the refreshing alternative to feeling angry and upset and sick of people assuming that they know more about the condition that I’ve lived with for almost a decade than I do, simply because they’ve read something somewhere. The miracle is that I’ve never actually punched anyone over this yet.
Posted on September 8, 2013, in M.E., Philosophy, Rant and tagged chronic illness, cures, health, living with M.E., M.E., ME/CFS, miracles, poem, poetry, treatment, treatments. Bookmark the permalink. 2 Comments.